What can I expect to find here?

These resources are developed in conjunction with the “Stories Matter”: Use of Narrative in IRB Member Education program workshop at the PRIM&R Advancing Ethical Research Conference. During these workshops, we have been exploring the use of different types of narrative resources to enhance research ethics education for IRB Members and other stakeholders. We have found that use of narrative resources in this setting:

Induces co-learning and more engaged learning experiences
Reduces the sense of distance between ethicist/reviewer and research participant
Leads to more effective identification of potential risks and harms in research

How do I use these resources?

These resources are used in a variety of ways:

They can be embedded in existing IRB Member or researcher training.
They can be used as supplements to standardized programs, such as CITI Training.
They can be shared with IRB members through meeting agendas or email distribution lists.
Many of these resources are very effectively used as bite-sized educational segments shared at the introduction of IRB Meetings.

How can I contribute?

This resource is curated through a joint partnership between Research & Compliance, 51福利社 and Gianna McMillan (MA), Bioethics Institute at Loyola Marymount University.

Resources

Journalism

Date	Author	Title
April, 1994	Keith Schneider	""
November, 1999	Sheryl Gay Stolberg	""
April, 2010	Amy Harmon	""
September, 2010	Carl Elliott	""
December, 2012	Raffi Khatchadourian	""
December, 2012	Judy Stone	"A Clinical Trial and Suicide Leave Many Questions"
March, 2013	Helen Epstein	""
August, 2013	Rosalind Early	""
November, 2013	Amy Dockser Marcus	""
July, 2014	Carl Elliott	""
May, 2016	Sarah Zhang	""
June, 2016	Benedict Carey	""
February, 2017	Sushma Subramanian	""
May, 2017	Kate Murphy	""
May. 2017	AP	""
January, 2018	Adam Rogers	""
May, 2018	Mya Roberson	""
June, 2018	Gina Kolata	""
January, 2019	Jesse Singal
February, 2019	Michele Munz	""
December, 2019	Shahla Farzan	""
January, 2020	Helen Branswell	""
December, 2019	Dyani Lewis	""

Cinema and TV

Year	Director(s)	Title/Series
1961	Stanley Kramer
1975	Charles Dubin
1990	Penny Marshall
1993	Roger Spottiswoode
1996	Michael Apted
1997	Joseph Sargent
1999	Roland Richter
2001	Mike Nichols
2004	Various	(2004 Series)
2005	Fernando Meirelles
2010	Mark Romanek
2015	Michael Almereyda
2015	Kyle Alvarez
2017	John Hoffman
2018	Bernard Friedman
2019	Buzzfeed
2019	Tim Wardle
2019	Todd Haynes

Fiction and Non-Fiction

Year	Author	Title
1886	Leo Tolstoy
1966	Sawako Aryioshi
1999	Allen M. Hornblum
2003		Being Human, Readings from the President's Council on Bioethics
2004	David Gilbert
2007	Allen M. Hornblum
2009	Ben Bova
2011	Rebecca Skloot
2011	Ann Patchett
2014	Matthew Thomas
2014	Karen M. Masterson
2016	Luke Dittrich
2016	Mary E. Williams
2017	Meredith Wadman
2017	William Rosen

Oral History and Podcasts

The following is a selection of items from the PRIM&R People & Perspectives Project and the More Than Meets the IRB Podcast

From the PRIM&R People & Perspectives Project:

Time	Guest	Topic
5:17	Charles McCarthy, PhD
10:39	Tom Beauchamp, PhD
4:07	Charles McCarthy, PhD
6:03	Charles McCarthy, PhD
3:33	LeRoy Walters, PhD
3:39	Robert Levine, MD
3:46	Tom Beauchamp, PhD
4:29	Robert Levine, MD
3:51	Robert Levine, MD
4:47	LeRoy Walters, PhD
7:35	Robert Veatch, PhD
4:12	Lisa M. Lee, PhD MS
5:18	Caroline Kithinji, BS MS
2:54	Christy Rentmeester, PhD
2:14	Leonard Glantz, JD
1:22	Bruce Gordon, MD
3:16	Rebecca Dresser, JD
6:22	Jeremy Sugarman, MD

More Than Meets the IRB:

Coming soon...